the community of Helensburgh is holding a fundraiser on Saturday June 23, for a little local fella who has a terminal brain disease.
To help the young family care for Caleb we are hoping to raise money to renovate the bathroom and add ramps to the family home as his mobility is in a rapid decline. Is there any chance I could ask if you are able to donate prize we could raffle off on the night?
I know the business community is always helping with fundraisers and I would not generally ask, but because this is a child I put my hand up to try and help make a difference. I gave Sue a flyer for the shop window but here are some further details further regarding the event and sweet Caleb for reference.
I really look forward to hearing from you
Warm regards
Rachael Hall
0423562726Join us in Á Night for Caleb’Saturday June 23rd.
We are pleased to announce that award winning Australian Country singer Darren Coggan and famed Blues guitarist Ray Beadle will be performing on the night to raise much needed funds for Caleb’s family.
Caleb turns 5 years old this June and has a life expectancy of five to ten years old.He was born as a beautiful and healthy baby but at about 12 months old Ailee and Sam, noticed that something was not quite right. Caleb wasn’t reaching his milestones and the ones he had aquired were regressing. Doctors and paediatricians assured them that he was fine.
By 18 months they went with their gut feelingand insisted on further investagations.
Following numerous consultations with specialists an MRI delivered some devastating news. Caleb had INAD Infantile Neuro Axonal Dystrophy.An extremelt rare, inherited degenerative disorder of the nervous system.Symptoms usually start around 6-24 months, the progression is usually rapid after the initial onset of symptoms.
Sam and Ailee are two of the most loving, caring and understanding parents you could eveabout their situation all they focus on is their family and the time they have left here on earth with their little boyr meet. If Caleb is having a good day, so are they.
The love for their boy is nothing short of amazing.
Last year they welcomed Ellie to their family through IVF to avoid this disease.
As you may imagine, in addition to the emotional starin and heartbreaking life decisions they are dealing with on a daily basis, they also have along list of medical bills and unexpected costs. Sam and Ailee never whinge or complain about their situation all they focus on is their family and the time they have left here on earth with their little boy.
Caleb is growing bigger by the week but with his loss of mobilityas the disease continues to progress is getting very difficult to move him around. This family is in urgent need of a bathroom renovation and ramps to acess their home.
THAT’S WHERE YOU COME IN
Join us in A Night for Caleb
WHEN : Saturday June 23rd 2018
TIME : 7.00pm – 10.00pm
WHERE : Tradies, Helensburgh
30 Boomerang Street Helensburgh
COST : $40
PURCHASE NOW AT: Crawchy’s swim school
NOTE: Finger food will be served during the night, drinks available to purchase at the bar.
Darren Coggan and Ray Beadle will perform during the night, there will be raffles, lucky door prizes, balloon bingo, bottle hoops and suprise bags to purchase on the night.
THANK YOU TO OUR MANY SPONSORS AND RAFFLE DONATIONS.
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